![]() To find out more about these studies and information on Chiari malformation please visit. If you are a diagnosed Chiari malformation patient and plan to make a post-mortem tissue donation, Conquer Chiari also recommends that you participate in other ongoing research studies being conducted by the Conquer Chiari Research Center at the University of Akron. ![]() Opportunity to participate in other Chiari research studies In a case of emergency or sudden death, please telephone the Bank immediately rather than registering on line. Call 1-80 (or 41) to discuss any aspects of tissue donation. Note: the tissue recovery will allow normal viewing of the body and does not delay funeral arrangements. Preregistration allows for quick recovery of tissue as tissue recovery should be completed within 24 hours after death. Chiari Malformation is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord. If you elect to complete the mail-in pdf form, please make a notation that you are supporting Conquer Chiari. On the "Register ON-LINE" form check "Conquer Chiari". Please click here for information on how to register. If you are diagnosed with type 1 or 2 Chiari malformation by a physician, you may preregister with the UMB Brain and Tissue Bank. Opportunity to participate in post-mortem tissue donation Thus, Conquer Chiari and the UMB Brain and Tissue Bank have joined efforts to accelerate research on Chiari malformation by creating the first Chiari patient tissue bank.Ĭonquer Chiari deeply thanks all those who chose to donate. The study of post-mortem tissue from individuals with Chiari malformation is critical to understanding the cause of Chiari and could lead to advances in diagnosis and treatment of this devastating neurological disorder.
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